Jack CP video 2
September 2, 2010 in Video
Athetoid, ataxic, spastic, or mixed? Quadriplegic or diplegic? Give me your vote!
September 2, 2010 in Video
Athetoid, ataxic, spastic, or mixed? Quadriplegic or diplegic? Give me your vote!
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FeliciaDG1 said on September 2, 2010
What a cute little flirt!
grakowsky said on September 2, 2010
Update: 3/12/2010 Jack was diagnosed with Angelman Syndrome, which has severe sensory issues associated with it. We now know these random movements are a consequence of the sensory issues.
grakowsky said on September 2, 2010
Actually, it turns out he has Angelman Syndrome, so no, not a quad, not any type of CP. As he’s gotten older the differences between AS and CP have become more apparent. The constant movement is due to sensory issues.
iamacoolkorean said on September 2, 2010
is he a quad?
birds16ful said on September 2, 2010
I do have cerebral palsy but my called Hemiplegia. I was born in June of 1993. I was diagnosed at 11 months old in June of 1994. I been taking ballet for 11 years old since I was 5 years old. I been going to Madonna School Serving Special Needs Students for 3 years now.
I love you Valerie Roberts, Annemarie Keating, Becca, Callie, Caylen, Colleen, Faith, Josee Bents, Kristy, Kristen Koley, Kristen, Mallory Rogers, Moira, Natalie Segar, Rachel, Stephanie, Andrew Hoffman & TyAyre Ross
Michaela
sydgirl2000 said on September 2, 2010
Allah bless u litle angel…
luv u
spoilt57 said on September 2, 2010
Aww bless him.
lookyouabigailkriby said on September 2, 2010
do have epliepy
fifthteletubby said on September 2, 2010
he’s adorable.
redcolt74 said on September 2, 2010
He acts like I did when I was younger. I have spastic diplegia.
grakowsky said on September 2, 2010
Thanks everyone for responding. Jack’s PT, OT, and neurologist all think he is ataxic with dystonia which causes the stiffness and random looking movements when he’s trying to move.
lovebug3312 said on September 2, 2010
I have Cerebral Palsy myself, so his arms don’t seem affected. Maybe he has spastic diplegia.
grakowsky said on September 2, 2010
Thanks for the comment and the suggestion. I will try to contact St. Louis Children’s Hospital and see if they can speculate. So far, his neurologist, PT, and OT all think he’s 100% ataxic. I think I just want to know what movements indicate spasticity and what movements don’t. I don’t have any experience with CP other than Jack!
thefavilles said on September 2, 2010
I posted on your other vid too. Again, I see that he is able to lift his legs independently and even in a sitting position. My son with mild spastic diplegia was never able to do that at that age. Even now at 4 and he walks, he has a difficult time doing things like that. He has limited strength for that type of movement. You may want to submit your video to St. Louis Children’s Hospital. They have a specialty clinic there. Dr. Park is AMAZING there.
nikitd said on September 2, 2010
His arms don’t seem that affected so I would also say he has some form of diplegia.
tinkwink92 said on September 2, 2010
I think he has spastic & ataxic Quadriplegia. My sister has spastic Quadriplegia. I have videos of her on my youtube
grakowsky said on September 2, 2010
Hi myacidsmiles
Thank you so much for replying. It gives me great hope to hear that you moved similar to Jack , and that he possibly has the same type of CP as you, and to see you typing on YouTube! I don’t know what to expect as far as what he’ll be able to do in the future, and I know there’s no way to tell now, but hearing from you fills me with hope. Thank you.
myacidsmiles said on September 2, 2010
Hey
I would guess that your little boy has Spastic & Ataxic Diplegia. His body movements and way of holding himself are almost identical to that of my own at his age and now- to an extent- Alhtough I only have Mild-Moderate CP, his way of moving is very like mine!